It appears my previous post about Lillian's Dr visit has disappeared into the ether, never to be seen again. Said doctor's appointment went very well for Lillian. Her BNP is down to 87 (from as high as 1900 in the past), and her last DR-17 levels were 24 (and they aren't even reported as positive under 20, so this is about as low as she can go). Her Cyclosporine levels were a little low at 199 (we want her at 250 to 300), but we simply think that she's outgrown her dose and it's time to go up. Dr. Kemna said her ECHO looks great, so it's about as good of a checkup that we could ask for.
In terms of things we still need to do - eating, eating, eating! At the risk of sounding like a broken record, Lillian continues to have issues eating, refusing to take a bottle at all right now. Also, in the near future, we hope to take her off her prednisone, a steroid she's on currently. Taking this off allows us to also take off a whole host of othermeds, reducing her total from 9ish to 4ish (I forget the exact numbers at the moment, and I'm in a bit of a rush)! That would be an awesome step to make and it's looking like we'll get to do it ahead of schedule.
Blogger had some issues and temporarily wiped out 3 days worth of posts so they could get back up and running..It's all back now..Praying your little one will take a liking to food. Super Nanny season 6 episode 5 I think is the one that deals with the picky eating diabetic child, might help you with ideas. God Bless ~ Lis
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