Monday, February 14, 2011

My Favorite Valentines

The best little girls ever! Lillian had a much better day today than she did yesterday. She kept more food down, she was in a better mood and she had more energy. I didn't mention this early, but she was extremely lethargic yesterday, barely able to stay up for over an hour without passing out, which is extremely unlike her. Today, she was back to her normal self, although she still wasn't interested in eating her later feeds.

We also found out that Lillian almost got a heart this weekend. I'm not entirely sure how to feel about it as we really want a heart for Lillian, but this also would have been a mismatched heart. This heart was offered and rejected by the child at the top of the list (more accurately by the doctors for the child at the top of list), and was offered to (and accepted by) another child on the list in California. We found out from our heart doctor that if this child had rejected the heart, it would have come to Lillian next. This means that Lillian is now basically 2nd on the national list (at least as far as I understand it) and will hopefully get a heart soon.

As a closing note, another CHD mother made a slideshow for a bunch of HLHS kids, and Lillian was one of the babies that she asked to include. I've included the video below.


  1. So emotional to watch the video. Praise the Lord for a heart for the little one in California. We're praying it won't be long now for little Lillian, Lord hold her up and give her strength.

  2. What a powerful video. Thanks for sharing it. Our family continues to pray for you guys and Lillian as she waits for her heart. We are praying it will be soon and a good match for her.

  3. Loved the video. What a journey Lillian has had. We count our blessings for each day that gets her closer to a new heart.